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| New lids for Dane from his sister Mikayla |
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| Playing games with the Smith's |
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| Watching Hawaii 5 0 with the sistas |
Some good news today! I don't know the exact names of everything, but Daner has had two LP with a zero count of Leukemia in his spine!! This is such great news because the last LP we were told there was still a small percentage in there and he has to have 3 zero counts to be done with the lps for this session. So today we went from none to two just like that! Very exciting news!
These pictures are so wonderful of Daner spending some quality time with two of his sisters. They sure love him a ton!
Mom's update for Wednesday, April 20
Daner had a great night and was able to rest easier after the nurse took his temperature in the early morning and his fever had finally subsided. I came just after he had woken and was able to visit with Nana about the night and her experience with the more serious doctor. I was so relieved to know that the lp procedures were successful and killing the leukemia in his spine. On Friday, Dane will go for hopefully his last lp in this session of treatment as well as a bone marrow extraction to see if the 10 days of chemo were successful as well. Halee had the day off from middle school and she wanted to spend it with her brother Dane, so they immediately embraced and were on the IPAD faster than you could say it's name. They were really cute all morning together figuring out and playing with new apps. Our neighbors, the Smiths came to visit and play. Trevor told Daner some funny Easter jokes like "why did the bald man put a bunny on his head? (because he needed the hare) and "what do you call a rabbit with fleas? (bugs bunny). They played UNO and another card game and had a lot of fun with him. The distractions are really good, mixes up the daily schedule and makes the time go by so much faster. Dad and Mikayla came for the afternoon and it was so enjoyable to be together as part of our family with Dane and just getting to hang out with each other. Sweet Dane was having a hard time though. He didn't want to be together in a hospital hooked up to fluids without his hair. He had realized that he was forgetting the little details about his room and home and had even forgotten he had a cat! This was emotionally challenging for him and we told him it was okay to be upset, disappointed, and mad at times. Halee and Mikayla were very sweet and nurturing to Dane and did cute things like snuggling with him, decorating his large picture window with drawings of our family, quotes, and words of strength from them. We all took Dane for a walk on different floors of the hospital and ended with Daner going to the cafeteria for a chocolate milk. Such milestones to report back to the nurses that he exercised and drank 7 ounces. Dad left with the girls and Daner and I got some great one on one time. He talked with me about being disappointed in himself for feeling down while his dad was here and I reassured him it was fine. Daner had a platelet transfusion and received some antibiotics. He was super chatty all night and I was so impressed by all his conversations. What a blessing to see the energy for life again. He finally wanted to eat, jalapeno cheddar popcorn,so we went for a walk to the cafeteria. He impressed himself by going on so many walks today. Of course, when we got to the cafeteria, the alarms started going off on his iv pole and the line to check out was super long. Dane got a little panicky, but I had him sit and relax while I took care of paying. We hurried back upstairs and the nurse rushed in to see why the alarms were going crazy. Well, his tubing had just gotten kinked and needed to be straightend out. Oh my, all that worrying for nothing. Daner continued to be chatty and holding on to our time together in the early morning hour. So precious I just never have the heart to turn him off and make him go to sleep. But, we finally did and we thanked our God for days like these.
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