After a long night, Daner luckily woke up feeling much better than he had in days! He started his third round of chemotherapy on Monday, June 6. The chemo drugs he is on this time are ones he has had before, Cytarabine and Etoposide, but double doses of both. These heavy doses have made him more sick than he has ever been before. Feeling so sick and throwing up more than ever has made him feel panicky, but after days of giving him every nausea medicine available he finally had the right balance of medicine to feel okay this morning. He was up until 3 am with tingling and stabbing in his legs. This was caused not from neuropothy but from too much of the pheneragan, an anti nausea medicine. He was really miserable and was wanting to be removed from his painful life, but after relaxing him and his nurse getting the okay to give him a dose of Midazolam, a drug that calms the brain and relaxes the nerves, the stabbing in his legs stopped and he fell into a restful sleep. He wanted to play Xbox as soon as he realized he felt somewhat okay this morning and after having such a bad day and night I gave in to him. I did convince him to play some phase 10 with me today while we finished Eagle Eye. I also read to him from his 100 cupboards book, we are almost finished! He had a more peaceful day today. He had some visits from Daner's Nana, one of Mom's friends, and Halee's friend Jenna who visits Dane when she is here at Children's for care. This evening was not as relaxing for him. Around 8:30 pm he spiked a fever and was really sick. His nurse gave him his scheduled anti nausea medicine, Pheneragan, which relaxed him and put him to sleep. Every day I am amazed at this special little guy. He is always so brave and resilient. It is hard to see him have to go through so much at such a young age, he will be a strong man one day because of it. I just love him so much.
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My handsome young man, there is a light at the end of the tunnel I promise - thank goodness there is also medicine that make us feel better when we are hurting. Was so glad to see you with your brothers and sisters having so much fun pretty soon you will be free to have all the fun you want. Just stay strong and positive. Love you and thank mom and dad for keeping us informed on how good you are doing. Hugs and kisses
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